UnDomestic

Writings of a teachermom, choosing to stay home with her kids, while loathing all domestic responsibilities! In late Aug. 2008, I was diagnosed with Triple Negative breast cancer. After surgery, chemo and radiation, I was given theall clear. However, in the late summer of 2008, I was diagnosed with a brain tumor, which metasticized to other areas.

Friday, September 12, 2008

I guess size matters


The other day our nanny Sara was changing her baby's diaper. Max was watching her do this, and he became quite interested in what he saw.

"Why is that so big?" he asked referring to little Leo's scrotum.

Sara just told him that that's what little babies looked like (or something similar).

However, Max, who seems to be in competition with everyone lately, couldn't let anyone think he wasn't better or at least equal to this little baby. He had to find something on him that was bigger.

So his next response was "Well, I have a big penis. His is little."

Oh my....and so it starts.

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Last night, even without Ativan, I was able to sleep through the night. Melvin even said that I was snoring! It was the best sleep I'd had since before my surgery.

Now I don't know if it was my new medications, or my full night of rest, but I had a lot less pain in my head today (probably a combination of both). My head was hardly hurting during the day (although I am experiencing some pain now), and I didn't need to take any Vicodin until tonight. The other issues on the right side of my face continued to bother me, including an earache. I'm hoping that the Neurontin that I just started will work this problem out soon.


I forgot to mention yesterday that when I was at Dr. Madavi's (the neurologist), she said that she wanted to order a spinal tap to be done on me. I can't remember if she wanted this to be done because of the spot they found on my MRI, or because of the pain and/or numbness I had been experiencing. To me, it doesn't matter why she said this...all I know is that when she said the words "spinal tap," I immediately shuddered. I actually know nothing about spinal taps, but I heard they stick a needle in your back, and that they're very painful. Dr. Madavi must have sensed my fear because she told me that I certainly can discuss it with my husband, and that I might want to go to my appointment at the Mayo Clinic and see what they say before I have the spinal tap done. Now it's not that I don't trust my doctor, I just don't like pain...any pain! Our Mayo appointment is Tuesday and Wednesday....I think I'll definitely see what they say first.

For now, I'm just incredibly thankful for the rest and since I feel so tired right now, I'm hoping tonight will be the same. Thank you to everyone who has been praying for better sleep for me. God is good.

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Thursday, September 11, 2008

Popping Pills...a lot of them!!!

I met another neurologist today. She was quite thorough, and she just came across as very knowledgeable and easy to talk to. She didn't seem sad like some of the other medical professionals I've come in contact with....sad meaning they feel bad that this is happening to me. She was more of a "let's get down to business and figure this out"...I liked that a lot.

I gave her my list of symptoms, prefacing them with the statement that I am NOT a hypochondriac, despite what it my list might indicate.

Her thoughts on the intense pain problem mirrored my husbands....nerve pain. I had a lot of nerve pain a few days after my mastectomy. I was given a medication called Neurontin, actually something they give to people with epilepsy. The pain gradually went away, and after a few weeks, I was able to stop taking it completely. Let's pray that the medicine works the same with this new pain. I hope it works quickly as well because although I can't remember exactly how I felt on the medication, I remember saying that the Neurontin was making me neurotic!

I am on so many different medications right now it's just crazy! I finally started writing down each pill I took because I kept forgetting throughout the day when and what I had consumed.

As an example, here's what I took today.

6AM
Tylenol...for my headache.

8AM
Zoloft...so I'm not so crabby.
Indomethacin...for my headaches...what the first neurologist prescribed to me when the migraine shot of Imatrex did not work. If after tomorrow if the headaches aren't better, I can discontinue this prescription.

2:30PM
Vicodin--for head pain and all my other pains. Today my back was hurting more, as was my ear. This pill makes me very sleepy, but works fairly well for the pain.

4:40PM
Neurontin--for my nerve pain...what we hope will stop all this pain. This is my new medicine that I pray works. It also makes me sleepy. This will be great at night, but all these "may cause drowsiness" drugs are going to be difficult to deal with during the day.

5:00PM
Tylenol -- for headache.
Multi-vitamin

6:20PM
Indomethecin-- as stated above, for headaches.

8:30PM
Nystatin--a mouthwash for sores on my tongue. I'm supposed to do this 4 times a day, but I keep forgetting.
Neurontin--as stated before, for the nerve pain. Normally my two doses will be spaced out more, but I didn't get them from the pharmacy until later today.
Vicodin--as stated before, for pain.

As you can see, I'm taking a lot of medications. Just another reason why I am so incredibly thankful that I have my husband to help me figure out how safe it is to take the drugs and the combination of them. I would think I was overdosing taking all these different pills, but having him to supervise my intake of medicines puts me at peace that everything will be just fine.

But my combo of Vicodin and Neurontin makes me VERY SLEEPY. I can barely keep my eyes open as I write this post. So with that, I think I better publish my post and get some much needed sleep.

Goodnight...and gold stars to everyone who thought about my problem today!!!! Thanks for the input!

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