Treatment change and continue
It has been a series of highs and lows around here, that's just the honest truth. Sometimes I'm fine just hanging out with my kids, but other times I'm sad. Actually lately, things have felt worst than better. The weakness/paralysis is really bringing me down emotionally. There's a lot I can't do now, or that is very difficult..like even putting on a shirt. Having to rely on anyone for such a basic need makes me cry. And I know that my flip/flop attitude is driving my family crazy.
Like now. I was a blubbering mess earlier. Then a neighbor came over to tell me about all these people involved with the benefit and all the donations being made and interest being generated for the Angel Foundation.....and I feel good and happy again. Still loopy and confused about a lot, but not depressed.
Anyhow, back to the medical plan.
After the results of the latest MRI, it was decided that I would have radiation down my spine again where I didn't have it before. This at first was to be in addition to the pill chemotherapy, But this morning that game plan even changed. Basically, due to the toxicity of the situation, I'm only having radiation now.
So let me recap for myself. I had surgry to have the Omyya resevoir put in, which would drip chemo directly onto my brain. Although the surgery was done, and I've had one injection, we're not going to continue with it until we have to. That includes the lumbar puncture that I was going to have to endure once a month as well. Don't ask me to explain....I have no idea. And now the regular oncologist is taking the advice of my radiation oncologist of stopping all chemo until radiation is done...which is daily for about 3 weeks...minus weekends. Is your head spinning yet?
Again, I'm just so thankful I have so many people around helping me figure it all out.
More family, friends and other visitors coming in tonight through this weekend. Looking forward to seeing everyone....hopefully with a clear mind and all my necessary physical plumbing in working order!!!!!...believe it or not, I'm not joking.
(I'm "stealing" my bible verse from my cousin Dayna today because I really like it, and I'm excited about her new job offer. She really stepped out in faith and is an inspiration to me.)
"God can do anything, you know—far more than you could ever imagine or guess or request in your wildest dreams! He does it not by pushing us around but by working within us, his Spirit deeply and gently within us." Ephesians 3:20 The Message