I started brain radiation last week. Despite the new findings of cancer in the spine, our original plan of action won't change. I will first have whole brain radiation for about 24 days. The new course of action involves some sort of chemotherapy to treat the spine. My oncologist is still deciding what kind of chemo. And discussion has taken place on whether I start chemo at the same time I am doing radiation. Currently the answer is no. If I did start chemo now, the dose would be lower to keep it safe in conjunction with the radiation. This may not be as effective. But if I don't start the chemo now, will the cancer spread? We haven't decided exactly what to do about this.
Above is a picture of some guy (not me) set up for radiation. Yes, I have to wear that weird plastic mesh face mask which is used to bolt me to the table. It reminds me of spiderman, and isn't the most comfortable thing, but radiation only lasts a few minutes, so it's no big deal.
The headaches and other pain still continue, which makes it hard to plan anything, because I'm not sure how I'm going to be feeling. Last week I missed a few informal gatherings with friends because of pain or sleeping. On Monday, I've had to cancel hanging out with one of my friends. And today I had to cancel an appointment. When I'm not at the doctor's, I'm doing a lot of sleeping. So when people ask to get together with me, I'm a little reluctant to do so. I'm supposed to go to Wisconsin Dells this weekend for a girls' weekend away...9 of us have been planning to hang out together in one large studio. I pray I get this pain under control because I REALLY want to go!
Tomorrow I have an MRI in the morning. It will last a couple hours. NOT looking forward to that. I think they're scanning my brain and some of my spine again. My doctor said that he doesn't expect to find anything. I told him NOT to say that, because every time a doctor has said that, they've found something. I hope to be able to squeeze a nap in before heading to my radiation appointment....ha ha...get it..."heading" to my head radiation. . And most importantly, I'd like to get to the salon or some place where they do waxing. All these steroids I've had to take are causing me to grow a beard. I feel like I'm seeing a Billygoat every time I look in the mirror!
Finally, a continued THANK YOU to everyone for your kind words. I've had so many e-mails, I'm having a hard time responding to them all. But please know that I'm so grateful for all the prayers, help and encouragement.
Labels: brain tumor, cancer, friends, MRI, radiation